I'm working on a big page in regards to SPD but ...
Today has been one of those stressful ones that I thought we'd got past.
I'm worn down and exhausted, Lou's behaviour has stepped up a gear over the past 2 weeks, and I can't really understand what's caused it. Even though I love her deeply, that old feeling that your really unsure of what your child will do next has returned along with the feeling of being scared of your own child which I absolutely hate feeling, I thought we'd got past that. I'm equally feeling frustrated that we've heard absolutely nothing from the referral to Occupational Therapy, that was first made in October 2015 then followed up in December '15. The extreme tantrums have returned even though after 2 different parenting courses I've put absolutely everything I've learnt from a total of 16 weeks of courses. Sometimes things work but most of the time they don't. I teach her to count to 10 lying down on the floor breathing slowly in and 10, I tell her to squeeze a teddy if she's angry. She grunts in frustration if she can't have another biscuit, if she's been told to eat her lunch, or told she can't go on the I Pad (she's obsessed with that devise!)
She's so angry its scary she hits me in the back of the legs almost losing my balance! And tries to pick Moo up by her waist so I place her in the safest place - her bedroom where she can't hurt herself or anyone else. Then proceeds to throw any objects she can get her hands on walloping them across the hallway. She simply doesn't know she's putting pressure on through touch she can't hug or tickle Moo without too much pressure and I spend the majority of the day acting as a referee to keep the 2 of them apart. I'm worried that if Lou hurts herself through thrashing about in a tantrum or hurts Moo that we will be blamed as parents for not protecting them. I am so desperate for outside professional advice to help us deal with this as we've addressed the behavioual strategies I now believe that this anger and frustation is due to sensory issues and not just that she's 'naughty.'
I spend the whole day saying "kind hands" "safe hands," "be nice," etc! I say it that much i'm sick of the sound of my own voice!
So I decided to chase up this appointment and explain the problems that have been happening lately. I left a message explaining everything to be called back the next day (today) and be told that "its probably a growth spurt" that's what I was told before, when this happened a few months ago!
Why don't professionals recognise SPD in the UK? It's beyond frustrating. No word on the OT appointment either so now I've gone straight to the GP who first diagnosed SPD in Dec '15 in hope of some answers. I used to be a calm person but this experience is making me like a screaming banshee! I'm always left feeling like these people think I'm making this all up I feel like I have to prove myself through evidence and video these outbursts!
I will keep on fighting for my child, that's my job as a parent! I will make sure that my voice on behalf of my child is heard even if I have to stop being so 'nice' about it!
Today has been one of those stressful ones that I thought we'd got past.
I'm worn down and exhausted, Lou's behaviour has stepped up a gear over the past 2 weeks, and I can't really understand what's caused it. Even though I love her deeply, that old feeling that your really unsure of what your child will do next has returned along with the feeling of being scared of your own child which I absolutely hate feeling, I thought we'd got past that. I'm equally feeling frustrated that we've heard absolutely nothing from the referral to Occupational Therapy, that was first made in October 2015 then followed up in December '15. The extreme tantrums have returned even though after 2 different parenting courses I've put absolutely everything I've learnt from a total of 16 weeks of courses. Sometimes things work but most of the time they don't. I teach her to count to 10 lying down on the floor breathing slowly in and 10, I tell her to squeeze a teddy if she's angry. She grunts in frustration if she can't have another biscuit, if she's been told to eat her lunch, or told she can't go on the I Pad (she's obsessed with that devise!)
She's so angry its scary she hits me in the back of the legs almost losing my balance! And tries to pick Moo up by her waist so I place her in the safest place - her bedroom where she can't hurt herself or anyone else. Then proceeds to throw any objects she can get her hands on walloping them across the hallway. She simply doesn't know she's putting pressure on through touch she can't hug or tickle Moo without too much pressure and I spend the majority of the day acting as a referee to keep the 2 of them apart. I'm worried that if Lou hurts herself through thrashing about in a tantrum or hurts Moo that we will be blamed as parents for not protecting them. I am so desperate for outside professional advice to help us deal with this as we've addressed the behavioual strategies I now believe that this anger and frustation is due to sensory issues and not just that she's 'naughty.'
I spend the whole day saying "kind hands" "safe hands," "be nice," etc! I say it that much i'm sick of the sound of my own voice!
So I decided to chase up this appointment and explain the problems that have been happening lately. I left a message explaining everything to be called back the next day (today) and be told that "its probably a growth spurt" that's what I was told before, when this happened a few months ago!
Why don't professionals recognise SPD in the UK? It's beyond frustrating. No word on the OT appointment either so now I've gone straight to the GP who first diagnosed SPD in Dec '15 in hope of some answers. I used to be a calm person but this experience is making me like a screaming banshee! I'm always left feeling like these people think I'm making this all up I feel like I have to prove myself through evidence and video these outbursts!
I will keep on fighting for my child, that's my job as a parent! I will make sure that my voice on behalf of my child is heard even if I have to stop being so 'nice' about it!